In this Section
Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.Wednesday, April 6, 2022
CHARGE syndrome, which affects approximately one in 10,000 newborns worldwide, is associated with ne…
Tyrese Dibba stars in animated classTuesday, March 22, 2022
A teenager who helped thousands of people learn British Sign Language (BSL) during the first Covid-1…
A Walk for ChargeTuesday, January 11, 2022
Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory…
The CHARGE Family Support Group is the UK’s registered charity for people with CHARGE Syndrome and their families.
The group’s aim is to create a positive, supportive network of individuals, parents, families and professionals to share ideas, experiences, information and give vital support.
The group is run by individuals with CHARGE, parents and grandparents as well as professionals with a particular interest in the condition. We work on an entirely voluntary basis and membership is free. New members are always welcome.
The group publishes a regular newsletter and can put families in touch with each other, for instance, to help tackle a particular issue or to find other families living locally.