In this Section
Behaviour In Charge Syndrome Online Questionnaire StudyTuesday, December 8, 2020
Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.
Rachel on the RunFriday, April 19, 2019
I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.
National Conference and Family Weekend AnnouncedSunday, March 18, 2018
The national conference is a different type of event to the regional family days (which are great!) …
The CHARGE Family Support Group is the UK’s registered charity for people with CHARGE Syndrome and their families.
The group’s aim is to create a positive, supportive network of individuals, parents, families and professionals to share ideas, experiences, information and give vital support.
The group is run by individuals with CHARGE, parents and grandparents as well as professionals with a particular interest in the condition. We work on an entirely voluntary basis and membership is free. New members are always welcome.
The group publishes a regular newsletter and can put families in touch with each other, for instance, to help tackle a particular issue or to find other families living locally.