The CHARGE Family Support Group is the UK’s registered charity for people with CHARGE Syndrome and their families

Stories

What is CHARGE?

Our Aims

The group’s aim is to create a positive, supportive network of individuals, parents, families and professionals to share ideas, experiences, information and give vital support.

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Who we are

The group is run by individuals with CHARGE, parents and grandparents as well as professionals with a particular interest in the condition. We work on an entirely voluntary basis and membership is free. New members are always welcome

Stories

Parents, carers, friends and family, and those living with CHARGE tell us their stories.

Browse the archive at our Stories page here

Information

Help us to build a database of resources that will help everyone in the CHARGE community and in other fields.

From the best walking frame to trachaeostomy tips, please submit your experiences and expertise to our system.

You'll find out more information here

Events

Our priority as a Group is to create opportunities to bring our families together. If you are interested in attending an event or helping to organise one in your area, please get in touch.

More information is available here

Fundraising

Our priority as a Group is to create opportunities to bring our families together. If you are interested in attending an event or helping to organise one in your area, please get in touch.

More information is available here