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Latest News

Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

News From Google

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10/17/2018 8:03:44 AM

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Birthday party raises money for CHARGE syndrome patients - WKRC TV Cincinnati

9/30/2018 8:21:22 AM

WKRC TV CincinnatiBirthday party raises money for CHARGE syndrome patientsWKRC TV CincinnatiConnor Logsdon was 15 months old when he passed away from CHARGE syndrome. A birthday party was held on what would've been his sixth birthday. The event was held to raise money for "Charge for Connor," a non-profit organization started by his ...

Scenes from the 2018 Kinetic Cup - Birmingham Business Journal

10/11/2018 9:48:47 PM

Birmingham Business JournalScenes from the 2018 Kinetic CupBirmingham Business Journal... Hunter Finch, Watson Donald, John Brandt and Hunter Bridwell. It came down to Flint and Knight in the finals, with Flint taking the championship. The fourth annual event raised more than $6,500 for CHARGE Syndrome. Check out the tournament bracket ...

Children's Book About Transplant Surgery Inspired by Young Patient - Michigan Medicine (blog)

9/25/2018 5:14:14 PM

Michigan Medicine (blog)Children's Book About Transplant Surgery Inspired by Young PatientMichigan Medicine (blog)Explaining a transplant to any child is difficult, but this case presented a unique challenge: Noah has CHARGE syndrome, a rare genetic disorder that in his case caused him to be born with kidney failure, deafness and delayed development. Unable to ...

UK Researcher Receives Nearly $1.9 Million to Study Retinal Regeneration - UKNow (press release)

10/3/2018 10:10:25 AM

UKNow (press release)UK Researcher Receives Nearly $1.9 Million to Study Retinal RegenerationUKNow (press release)In addition to funding from the NIH, Morris was a recipient of the Pew Foundation's Biomedical Scholar award from 2011-2015, and has received grants from the Fight for Sight Foundation, the Knights Templar Eye Foundation and the CHARGE Syndrome ...and more »

Latest News

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…

join easyfundraising to help raise money while you shop

join easyfundraising to help raise money while you shop

Posted on Tuesday 9 January 2018

Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.

Merry Christmas and a Happy New Year

Merry Christmas and a Happy New Year

Posted on Thursday 4 January 2018

A Christmas message from the Team

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

Posted on Thursday 9 November 2017

The Ultimate Guide to Adapting Your Home If You have Visual Impairment