News

Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

 

News From Google

Saratoga Springs girl receives MVP treatment at Bees game - Good4Utah

7/23/2017 7:22:35 AM

Good4UtahSaratoga Springs girl receives MVP treatment at Bees gameGood4UtahTwelve-year-old Sarah Gubler was born with CHARGE Syndrome, which includes many medical problems and sensory losses. For the first five years of her life, Sarah required around-the-clock care, and her bedroom looked like an intensive care unit -- full ...

Boardman family heading to D.C. to talk Medicaid importance ... - WKBN.com

7/8/2017 10:51:25 PM

WKBN.comBoardman family heading to D.C. to talk Medicaid importance ...WKBN.comBOARDMAN, Ohio (WKBN) – A Boardman family has been asked to go to Washington D.C. and meet with lawmakers this week. They'll be talking about the ...and more »

Celebrations are in order after Go Bananas success - and it's all thanks to you - ChronicleLive

7/14/2017 4:23:22 PM

ChronicleLiveCelebrations are in order after Go Bananas success - and it's all thanks to youChronicleLiveThanks to the donations, all of the equipment has been purchased and some families have already received theirs and brought them along to the party on Saturday. Freya was diagnosed with the rare genetic Charge Syndrome as a baby and it massively ...

How to talk to the mum of a special needs baby - Yahoo7 News

7/9/2017 8:26:59 AM

Yahoo7 NewsHow to talk to the mum of a special needs babyYahoo7 NewsNSW mum Holly Karten's incredible daughter Kokoro was born with CHARGE syndrome, a complex genetic syndrome that caused her to be deaf and blind. Here she tells her own moving story and explains how you can talk to a mum who has just given birth ...

Keep going bananas to raise the final £20000 needed by The Sunshine Fund to help local kids - ChronicleLive

6/27/2017 5:00:48 PM

ChronicleLiveKeep going bananas to raise the final £20000 needed by The Sunshine Fund to help local kidsChronicleLivePupils at Swalwell Primary also got behind their classmate Freya Carr-Wright who needs a specialist iPad to help her with her schoolwork due to her rare Charge Syndrome which severely affects her sight. Schools around the North East supporting Wear ...