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Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

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6/20/2018 8:00:44 AM

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Taliah bravely confronts CHARGE Syndrome - San Diego Jewish World

6/15/2018 12:00:50 AM

San Diego Jewish WorldTaliah bravely confronts CHARGE SyndromeSan Diego Jewish WorldUnlike her peers, Taliah is living with CHARGE Syndrome. CHARGE is a rare and complex genetic syndrome with multiple issues, often difficult to identify. Children with this syndrome face many challenges in the sensory areas with vision and hearing ...

Study offers hope for autism - Cincinnati Business Courier - Cincinnati Business Courier

6/19/2018 6:07:23 PM

Cincinnati Business CourierStudy offers hope for autism - Cincinnati Business CourierCincinnati Business CourierScientists at Cincinnati Children's Hospital have solved the mystery of why a gene already linked to some people with autism is critical to healthy neuronal ...and more »

Scientists learn more about how gene linked to autism affects brain - EurekAlert (press release)

6/18/2018 5:03:23 PM

EurekAlert (press release)Scientists learn more about how gene linked to autism affects brainEurekAlert (press release)Funding support for the research came in part from: National Institutes of Health (R01NS072427, R01NS075243); the National Multiple Sclerosis Society (RG1508, NMSS RG-1501-02851); the CHARGE syndrome Foundation; the National Natural Science ...and more »

Adorable girl suffers from a rare condition - but here's how the Sunshine Fund has changed her life - ChronicleLive

6/15/2018 6:04:48 AM

ChronicleLiveAdorable girl suffers from a rare condition - but here's how the Sunshine Fund has changed her lifeChronicleLiveFreya, from Winlaton, Gateshead, was then diagnosed with the extremely rare CHARGE syndrome. The genetic condition affects all aspects of her life such as her sight, hearing, balance, breathing and growth. But mum Bev Wright, 46, told how her little ...

Latest News

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…

join easyfundraising to help raise money while you shop

join easyfundraising to help raise money while you shop

Posted on Tuesday 9 January 2018

Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.

Merry Christmas and a Happy New Year

Merry Christmas and a Happy New Year

Posted on Thursday 4 January 2018

A Christmas message from the Team

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

Posted on Thursday 9 November 2017

The Ultimate Guide to Adapting Your Home If You have Visual Impairment