Introduction

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

In this Section

Latest News

Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

News From Google

Inspirational young Islanders crowned at Child of Wight Awards 2022 - Isle of Wight County Press

5/17/2022 5:00:00 AM

Inspirational young Islanders crowned at Child of Wight Awards 2022  Isle of Wight County Press

Williams Racing in Grove supports deaf F1 fans in new campaign - Herald Series

5/3/2022 8:00:00 AM

Williams Racing in Grove supports deaf F1 fans in new campaign  Herald Series

Strength in Mothers: The story of Sloan's Scrunchies - Standard-Examiner

5/6/2022 8:00:00 AM

Strength in Mothers: The story of Sloan's Scrunchies  Standard-Examiner

Baby formula shortage causes panic, stress among Lynchburg-area parents - Lynchburg News and Advance

5/18/2022 8:00:00 AM

Baby formula shortage causes panic, stress among Lynchburg-area parents  Lynchburg News and Advance

The CHARGE syndrome ortholog CHD-7 regulates TGF-β pathways in Caenorhabditis elegans | Proceedings of the National Academy of Sciences - pnas.org

4/8/2022 8:00:00 AM

The CHARGE syndrome ortholog CHD-7 regulates TGF-β pathways in Caenorhabditis elegans | Proceedings of the National Academy of Sciences  pnas.org

Remote learning in Chicago Public Schools to expand - Chicago Tribune

5/9/2022 8:00:00 AM

Remote learning in Chicago Public Schools to expand  Chicago Tribune

CHARGE syndrome | Nevada Dual Sensory Impairment Project - Nevada Today

12/23/2020 8:00:00 AM

CHARGE syndrome | Nevada Dual Sensory Impairment Project  Nevada Today

CHARGE Syndrome: Symptoms, Diagnosis, and Treatment - Verywell Health

12/2/2019 8:00:00 AM

CHARGE Syndrome: Symptoms, Diagnosis, and Treatment  Verywell Health

Birmingham teen sign language teacher stars in animated class - BBC

3/15/2022 7:00:00 AM

Birmingham teen sign language teacher stars in animated class  BBC

Hedge End man to walk 100 miles in memory of his son with Charge Syndrome - Southern Daily Echo

1/11/2022 8:00:00 AM

Hedge End man to walk 100 miles in memory of his son with Charge Syndrome  Southern Daily Echo

Latest News

Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.

Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.

Posted on Wednesday 6 April 2022

CHARGE syndrome, which affects approximately one in 10,000 newborns worldwide, is associated with neurological and behavioural conditions like intellectual disability, attention deficit disorder, conv…

Tyrese Dibba stars in animated class

Tyrese Dibba stars in animated class

Posted on Tuesday 22 March 2022

A teenager who helped thousands of people learn British Sign Language (BSL) during the first Covid-19 lockdown is being turned into an animated character in new lessons.

A Walk for Charge

A Walk for Charge

Posted on Tuesday 11 January 2022

Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory of his son that passed away having been diagnosed with CHARGE Syndrome which is a rare genetic dise…

Behaviour In Charge Syndrome Online Questionnaire Study

Behaviour In Charge Syndrome Online Questionnaire Study

Posted on Tuesday 8 December 2020

Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.