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Latest News
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Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.
Wednesday, April 6, 2022
CHARGE syndrome, which affects approximately one in 10,000 newborns worldwide, is associated with ne…
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Tyrese Dibba stars in animated class
Tuesday, March 22, 2022
A teenager who helped thousands of people learn British Sign Language (BSL) during the first Covid-1…
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A Walk for Charge
Tuesday, January 11, 2022
Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory…
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News From Google
2/6/2024 7:14:11 AMT-Cell Immunodeficiencies With Congenital Alterations of Thymic Development: Genes Implicated and Differential Immunological and Clinical Features Frontiers
Research shows fetal ear shape may indicate rare genetic condition - EurekAlert
5/6/2024 8:00:00 AMResearch shows fetal ear shape may indicate rare genetic condition EurekAlert
Bracelets empower teen with CHARGE syndrome - Global News Toronto
4/4/2024 8:00:00 AMBracelets empower teen with CHARGE syndrome Global News Toronto
Disabled girl's grandad carer cannot afford haircut after giving up work - BBC
10/2/2023 8:00:00 AMDisabled girl's grandad carer cannot afford haircut after giving up work BBC
CHARGE syndrome: a review of the immunological aspects - Nature.com
2/18/2015 8:00:00 AMCHARGE syndrome: a review of the immunological aspects Nature.com
11/1/2023 7:00:00 AMCharity award nomination for Thea, 6, who bravely faced huge upheaval after brother born with rare genetic syndrome Falkirk Herald
My sister proved doctors wrong for 32 years - I want you to know her story - Metro.co.uk
11/27/2023 8:00:00 AMMy sister proved doctors wrong for 32 years - I want you to know her story Metro.co.uk
Heartbroken Scots dad describes 'darkest hour' after losing son to rare disease - Daily Record
9/7/2023 8:00:00 AMHeartbroken Scots dad describes 'darkest hour' after losing son to rare disease Daily Record
9/11/2023 8:00:00 AMCrawley friends climbing Snowdonia to help raise money for four-year-old with a rare genetic disorder SussexWorld
9/25/2023 8:00:00 AM'Every year, I run the Cardiff Half Marathon for the children's hospital that cares for our son' Wales Online