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National Conference and Family Weekend Announced
Sunday, March 18, 2018
The national conference is a different type of event to the regional family days (which are great!) …
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join easyfundraising to help raise money while you shop
Tuesday, January 09, 2018
Join easyfundraising and you can collect free donations for us every time you buy something online. …
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Merry Christmas and a Happy New Year
Thursday, January 04, 2018
A Christmas message from the Team
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10/30/2018 4:52:16 PMSix-year-old girl with Burin Peninsula roots gets 'Perfect' birthday hug from Ed SheeranThe TelegramAt two-months-old, after recovering from her first open heart surgery, Scarlett was diagnosed with CHARGE syndrome. Jervis and her husband Kyle were devastated by the news. “We knew she would live a life full of hospitals, therapies, and surgeries ...
11/7/2018 1:15:39 PMThe Big UK NewsroomA 195-year-old disabled children's charity in Stockport is celebrating a decade of being the Seashell Trust.The Big UK NewsroomElliot Smith, 16, has CHARGE Syndrome and is profoundly deaf with severe learning and communication disabilities, as well as balance and mobility issues. His parents Angela and Trevor moved from Kingston Upon Thames so he could attend Seashell ...
Mum's tribute to Leila who battled CHARGE Syndrome - Gazette
7/17/2018 8:44:07 AMGazetteMum's tribute to Leila who battled CHARGE SyndromeGazetteLeila Willmott, from Stanway, was born in 2011 with a condition known as CHARGE Syndrome. It was discovered during mum Ellie's 20 week scan. Before Leila was born at the Queen Charlotte Hospital, in London, Ellie, 27, was told her daughter was not ...and more »
Blind Seneca Valley student makes special announcement for White Cane Day - Butler Eagle
10/20/2018 6:11:50 PMBlind Seneca Valley student makes special announcement for White Cane DayButler EagleOne of these people is Brandon Wingard, an eighth grade student at Ryan Gloyer Middle School who was born with CHARGE syndrome, iris and retina colobomas, nystagmus and subluxed lenses which all contribute to his diagnosis of being legally blind.
