In this Section
Latest News
-
National Conference and Family Weekend Announced
Sunday, March 18, 2018
The national conference is a different type of event to the regional family days (which are great!) …
-
join easyfundraising to help raise money while you shop
Tuesday, January 09, 2018
Join easyfundraising and you can collect free donations for us every time you buy something online. …
-
Merry Christmas and a Happy New Year
Thursday, January 04, 2018
A Christmas message from the Team
Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us page.
Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that.
News From Google
This RSS feed URL is deprecated
10/17/2018 8:03:44 AMThis RSS feed URL is deprecated, please update. New URLs can be found in the footers at https://news.google.com/news
Birthday party raises money for CHARGE syndrome patients - WKRC TV Cincinnati
9/30/2018 8:21:22 AMWKRC TV CincinnatiBirthday party raises money for CHARGE syndrome patientsWKRC TV CincinnatiConnor Logsdon was 15 months old when he passed away from CHARGE syndrome. A birthday party was held on what would've been his sixth birthday. The event was held to raise money for "Charge for Connor," a non-profit organization started by his ...
Scenes from the 2018 Kinetic Cup - Birmingham Business Journal
10/11/2018 9:48:47 PMBirmingham Business JournalScenes from the 2018 Kinetic CupBirmingham Business Journal... Hunter Finch, Watson Donald, John Brandt and Hunter Bridwell. It came down to Flint and Knight in the finals, with Flint taking the championship. The fourth annual event raised more than $6,500 for CHARGE Syndrome. Check out the tournament bracket ...
Children's Book About Transplant Surgery Inspired by Young Patient - Michigan Medicine (blog)
9/25/2018 5:14:14 PMMichigan Medicine (blog)Children's Book About Transplant Surgery Inspired by Young PatientMichigan Medicine (blog)Explaining a transplant to any child is difficult, but this case presented a unique challenge: Noah has CHARGE syndrome, a rare genetic disorder that in his case caused him to be born with kidney failure, deafness and delayed development. Unable to ...
UK Researcher Receives Nearly $1.9 Million to Study Retinal Regeneration - UKNow (press release)
10/3/2018 10:10:25 AMUKNow (press release)UK Researcher Receives Nearly $1.9 Million to Study Retinal RegenerationUKNow (press release)In addition to funding from the NIH, Morris was a recipient of the Pew Foundation's Biomedical Scholar award from 2011-2015, and has received grants from the Fight for Sight Foundation, the Knights Templar Eye Foundation and the CHARGE Syndrome ...and more »
