Introduction

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

In this Section

Latest News

Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

News From Google

Raising money for CHARGE Syndrome patients - The Transcontinental

3/21/2019 8:00:00 AM

Raising money for CHARGE Syndrome patients  The TranscontinentalAfter being diagnosed with CHARGE Syndrome, Alison Mckerlie is on a mission to raise funds and spread awareness.

Spotlight on...Kathryn Brown - Nursery World

3/31/2019 9:00:00 AM

Spotlight on...Kathryn Brown  Nursery WorldRead Spotlight on...Kathryn Brown childcare and the latest childcare & early years news & best practice on Nursery World.

Prader-Willi Syndrome Diagnosed By EpiSign Blood Test - Prader-Willi News

4/9/2019 5:58:00 PM

Prader-Willi Syndrome Diagnosed By EpiSign Blood Test  Prader-Willi NewsA new blood test called EpiSign may help identify complex and hard-to-diagnose genomic imprinting disorders such as Prader-Willi syndrome (PWS).

Students with disabilities prepare for life after high school graduation - WJHL-TV News Channel 11

4/9/2019 9:00:00 AM

Students with disabilities prepare for life after high school graduation  WJHL-TV News Channel 11KINGSPORT, Tenn.(WJHL) - It wasn't that long ago that high school graduation meant the end of many opportunities for students with disabilities, but that's ...

GGC launches EpiSign, a novel clinical test for epigenetic changes - EurekAlert

4/1/2019 9:00:00 AM

GGC launches EpiSign, a novel clinical test for epigenetic changes  EurekAlertGreenwood Diagnostic Laboratories at the Greenwood Genetic Center, in collaboration with London Health Sciences Centre, announce the launch of a new ...

Latest News

Rachel on the Run

Rachel on the Run

Posted on Friday 19 April 2019

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…

join easyfundraising to help raise money while you shop

join easyfundraising to help raise money while you shop

Posted on Tuesday 9 January 2018

Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.

Merry Christmas and a Happy New Year

Merry Christmas and a Happy New Year

Posted on Thursday 4 January 2018

A Christmas message from the Team