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Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us page. 

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Small and mighty Sam: Eagles dedicate their season to coach's son - KLTV

5/24/2017 6:11:18 AM

Small and mighty Sam: Eagles dedicate their season to coach's sonKLTVbaseball with charge syndrome, Sam is legally blind. Meaning he will never be able to watch the game his father has coached for 21 years. "I try not to dwell on what he cant do and focus on what he can. Hopefully his mind, which is an amazing thin, can ...

Terminally ill nurse continues to care for girl, 12 - BBC News - BBC News

5/9/2017 12:05:01 PM

BBC NewsTerminally ill nurse continues to care for girl, 12 - BBC NewsBBC NewsJoanna O'Toole said looking after sick children had "taught her an awful lot" about her own situation.and more »

Fundraiser held to help Winchester girl with illness - WHAG

5/10/2017 3:31:00 AM

WHAGFundraiser held to help Winchester girl with illnessWHAGWinchester, VA - Life has not been so kind to Baylee Scott. She battles charge syndrome, a rare genetic disease that affects many areas of the body. The 4-year-old has undergone 17 surgeries, including two-open heart surgeries. She's scheduled for her ...

Autism diagnoses surge in Mississippi - Oxford Eagle

5/8/2017 4:31:04 PM

Autism diagnoses surge in MississippiOxford EagleDr. Kasee Stratton, a Mississippi licensed psychologist, operates the Bulldog CHARGE Syndrome Research Laboratory as well as serving as co-director of Mississippi State University's Autism and Developmental Disabilities Clinic. Though her ...

Panel Rejects New Liability Theory in Med Mal Suit | New York Law ... - New York Law Journal (registration)

4/26/2017 10:25:55 PM

New York Law Journal (registration)Panel Rejects New Liability Theory in Med Mal Suit | New York Law ...New York Law Journal (registration)A medical malpractice plaintiff cannot assert a new liability theory after the doctors and hospital she sued presented prima facie evidence that her hearing ...and more »

Latest News

Dr David Brown to give talk in Bristol

Dr David Brown to give talk in Bristol

Posted on Tuesday 2 May 2017

Dr David Brown comes to the SENSE centre in Bristol on 7th June to give a presentation entitled: CHARGE syndrome after 34 years - an overview with a focus on sensory issues, posture and movement, and …

SIGNtific

SIGNtific

Posted on Wednesday 15 February 2017

SIGNtific is a series of Deaf-led family events at the Science Museum with voiceover interpreters that take place on the first Saturday of every month and during the holidays. Suitable for Deaf and he…

Multi-level tree house brings smile to boy with CHARGE Syndrome

Multi-level tree house brings smile to boy with CHARGE Syndrome

Posted on Friday 16 September 2016

Tree house brings smile to boy with CHARGE syndrome

We Have Charge Video

We Have Charge Video

Posted on Monday 12 September 2016

A video posted by Claudia Junghans on VIMEO interviews people with CHARGE and explores their lives