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News From Google

Saratoga Springs girl receives MVP treatment at Bees game - Good4Utah

7/23/2017 7:22:35 AM

Good4UtahSaratoga Springs girl receives MVP treatment at Bees gameGood4UtahTwelve-year-old Sarah Gubler was born with CHARGE Syndrome, which includes many medical problems and sensory losses. For the first five years of her life, Sarah required around-the-clock care, and her bedroom looked like an intensive care unit -- full ...

Boardman family heading to D.C. to talk Medicaid importance ... - WKBN.com

7/8/2017 10:51:25 PM

WKBN.comBoardman family heading to D.C. to talk Medicaid importance ...WKBN.comBOARDMAN, Ohio (WKBN) – A Boardman family has been asked to go to Washington D.C. and meet with lawmakers this week. They'll be talking about the ...and more »

Celebrations are in order after Go Bananas success - and it's all thanks to you - ChronicleLive

7/14/2017 4:23:22 PM

ChronicleLiveCelebrations are in order after Go Bananas success - and it's all thanks to youChronicleLiveThanks to the donations, all of the equipment has been purchased and some families have already received theirs and brought them along to the party on Saturday. Freya was diagnosed with the rare genetic Charge Syndrome as a baby and it massively ...

How to talk to the mum of a special needs baby - Yahoo7 News

7/9/2017 8:26:59 AM

Yahoo7 NewsHow to talk to the mum of a special needs babyYahoo7 NewsNSW mum Holly Karten's incredible daughter Kokoro was born with CHARGE syndrome, a complex genetic syndrome that caused her to be deaf and blind. Here she tells her own moving story and explains how you can talk to a mum who has just given birth ...

Keep going bananas to raise the final £20000 needed by The Sunshine Fund to help local kids - ChronicleLive

6/27/2017 5:00:48 PM

ChronicleLiveKeep going bananas to raise the final £20000 needed by The Sunshine Fund to help local kidsChronicleLivePupils at Swalwell Primary also got behind their classmate Freya Carr-Wright who needs a specialist iPad to help her with her schoolwork due to her rare Charge Syndrome which severely affects her sight. Schools around the North East supporting Wear ...

Latest News

James Hoskins is raising money

James Hoskins is raising money

Posted on Monday 3 July 2017

james Hoskins is raising money for his niece in an event which promises to be full of action

Dr David Brown to give talk in Bristol

Dr David Brown to give talk in Bristol

Posted on Tuesday 2 May 2017

Dr David Brown comes to the SENSE centre in Bristol on 7th June to give a presentation entitled: CHARGE syndrome after 34 years - an overview with a focus on sensory issues, posture and movement, and …

SIGNtific

SIGNtific

Posted on Wednesday 15 February 2017

SIGNtific is a series of Deaf-led family events at the Science Museum with voiceover interpreters that take place on the first Saturday of every month and during the holidays. Suitable for Deaf and he…

Multi-level tree house brings smile to boy with CHARGE Syndrome

Multi-level tree house brings smile to boy with CHARGE Syndrome

Posted on Friday 16 September 2016

Tree house brings smile to boy with CHARGE syndrome