In this Section
Latest News
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Behaviour In Charge Syndrome Online Questionnaire Study
Tuesday, December 8, 2020
Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.
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Rachel on the Run
Friday, April 19, 2019
I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.
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National Conference and Family Weekend Announced
Sunday, March 18, 2018
The national conference is a different type of event to the regional family days (which are great!) …
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News From Google
4/1/2021 8:00:00 AMDad of Scots tot with rare condition says lockdown restrictions could have saved his life Daily Record
Ajax, Ont., family raising awareness of rare disorder - Global News
3/29/2021 8:00:00 AMAjax, Ont., family raising awareness of rare disorder Global News
Wales' children's hospices want same funding as rest of UK - BBC News
4/10/2021 2:00:49 PMWales' children's hospices want same funding as rest of UK BBC News
Family honor 9-year-old with a sweet treat to help kids with special needs - FOX 61
4/2/2021 6:51:00 PMFamily honor 9-year-old with a sweet treat to help kids with special needs FOX 61
This program helps people who have hearing and vision loss get free devices. Here's how - KSL.com
4/12/2021 4:20:17 AMThis program helps people who have hearing and vision loss get free devices. Here's how KSL.com
