Introduction

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

In this Section

Latest News

Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

News From Google

Dad of Scots tot with rare condition says lockdown restrictions could have saved his life - Daily Record

4/1/2021 8:00:00 AM

Dad of Scots tot with rare condition says lockdown restrictions could have saved his life  Daily Record

Ajax, Ont., family raising awareness of rare disorder - Global News

3/29/2021 8:00:00 AM

Ajax, Ont., family raising awareness of rare disorder  Global News

Wales' children's hospices want same funding as rest of UK - BBC News

4/10/2021 2:00:49 PM

Wales' children's hospices want same funding as rest of UK  BBC News

Family honor 9-year-old with a sweet treat to help kids with special needs - FOX 61

4/2/2021 6:51:00 PM

Family honor 9-year-old with a sweet treat to help kids with special needs  FOX 61

This program helps people who have hearing and vision loss get free devices. Here's how - KSL.com

4/12/2021 4:20:17 AM

This program helps people who have hearing and vision loss get free devices. Here's how  KSL.com

Latest News

Behaviour In Charge Syndrome Online Questionnaire Study

Behaviour In Charge Syndrome Online Questionnaire Study

Posted on Tuesday 8 December 2020

Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.

Rachel on the Run

Rachel on the Run

Posted on Friday 19 April 2019

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…

join easyfundraising to help raise money while you shop

join easyfundraising to help raise money while you shop

Posted on Tuesday 9 January 2018

Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.