News

Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

 

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Authorities probe bomb found in Kansas field - Manhattan Mercury (subscription)

6/26/2017 11:44:56 PM

Authorities probe bomb found in Kansas fieldManhattan Mercury (subscription)Golden is battling CHARGE syndrome, which affects his vision, hearing and heart, and also stunts his growth. Oak Grove Elementary School Resource Officer Devin Kallauner recalled the decision-making process with the other officers. “It started off with ...and more »

Camp at UK Teaches Expanded Core, Independence to Students ... - UKNow (press release)

6/26/2017 5:30:12 PM

UKNow (press release)Camp at UK Teaches Expanded Core, Independence to Students ...UKNow (press release)A group of teenagers from across Kentucky participated in a camp for students who are deaf-blind last week at UK. The camp's activities - which included grocery ...and more »

Missouri boy with genetic disorder deemed honorary officer - Columbia Daily Tribune

6/25/2017 11:47:06 PM

Missouri boy with genetic disorder deemed honorary officerColumbia Daily TribuneGolden is battling CHARGE syndrome, which affects his vision, hearing and heart, and also stunts his growth. Oak Grove Elementary School Resource Officer Devin Kallauner recalled the decision-making process with the other officers. “It started off with ...and more »

Children's Miracle Network Celebration: Meet Emma - PA home page

5/30/2017 12:23:48 AM

PA home pageChildren's Miracle Network Celebration: Meet EmmaPA home pageEmma was born with "Charge Syndrome" and wasn't supposed to live to her first birthday. "Charge" is an acronym for a rare syndrome caused by a genetic disorder. It affects many areas of the body from her eyes, heart, nasal passages, growth, and hearing ...

Disabled man caught in the middle of program, family disputes - Toronto Star

6/16/2017 4:04:06 PM

Toronto StarDisabled man caught in the middle of program, family disputesToronto StarNicholas Deak, who has CHARGE syndrome, won't be able to use the organization's services as of July 4, according to a letter sent to his father, Leslie Deak, last month from the organization's board of directors president. The reason for the decision ...