Introduction

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

In this Section

Latest News

Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

News From Google

Gene Therapy for Hearing Loss on the Horizon : The Hearing Journal - LWW Journals

12/29/2021 7:58:53 PM

Gene Therapy for Hearing Loss on the Horizon : The Hearing Journal  LWW Journals

The Chronicle Sunshine Fund - Freya's story - In Your Area

1/21/2022 5:32:20 AM

The Chronicle Sunshine Fund - Freya's story  In Your Area

CHARGE Syndrome Associated with Ocular Abnormalities | OPTO - Dove Medical Press

10/25/2021 8:00:00 AM

CHARGE Syndrome Associated with Ocular Abnormalities | OPTO  Dove Medical Press

15 Scots children who inspired us with their bravery in 2021 - Daily Record

1/1/2022 8:00:00 AM

15 Scots children who inspired us with their bravery in 2021  Daily Record

Most TN universities do not have fulltime officers in key posts - The Hindu

1/19/2022 7:05:23 AM

Most TN universities do not have fulltime officers in key posts  The Hindu

A week in the life of a Julia's House nurse - Swindon Advertiser

12/31/2021 8:00:00 AM

A week in the life of a Julia's House nurse  Swindon Advertiser

Treating neurological symptoms of CHARGE syndrome - Medical Xpress

4/28/2021 8:00:00 AM

Treating neurological symptoms of CHARGE syndrome  Medical Xpress

CHARGE Syndrome: Symptoms, Diagnosis, and Treatment - Verywell Health

12/2/2019 8:00:00 AM

CHARGE Syndrome: Symptoms, Diagnosis, and Treatment  Verywell Health

Mum speaks about how daughter’s rare condition means she hasn't had full night’s sleep for six years - Chronicle Live

10/6/2021 8:00:00 AM

Mum speaks about how daughter’s rare condition means she hasn't had full night’s sleep for six years  Chronicle Live

CHARGE syndrome | Nevada Dual Sensory Impairment Project - Nevada Today

12/23/2020 8:00:00 AM

CHARGE syndrome | Nevada Dual Sensory Impairment Project  Nevada Today

Latest News

A Walk for Charge

A Walk for Charge

Posted on Tuesday 11 January 2022

Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory of his son that passed away having been diagnosed with CHARGE Syndrome which is a rare genetic dise…

Behaviour In Charge Syndrome Online Questionnaire Study

Behaviour In Charge Syndrome Online Questionnaire Study

Posted on Tuesday 8 December 2020

Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.

Rachel on the Run

Rachel on the Run

Posted on Friday 19 April 2019

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…