Introduction

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

In this Section

Latest News

  • Test

    Friday, June 12, 2020

    Proin eget tortor risus. Praesent sapien massa, convallis a pellentesque nec, egestas non nisi. Pell…

  • Rachel on the Run

    Friday, April 19, 2019

    I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

  • National Conference and Family Weekend Announced

    Sunday, March 18, 2018

    The national conference is a different type of event to the regional family days (which are great!) …

Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

News From Google

Kingsville Elementary student Carson Locher raising money for CHARGE syndrome - The Star Beacon

8/29/2020 8:00:00 AM

Kingsville Elementary student Carson Locher raising money for CHARGE syndrome  The Star Beacon

DiGeorge Syndrome Drug Market Key Factors Analysis, Demand, Overview and Top Companies Natera, Inc, - PharmiWeb.com

9/25/2020 8:52:46 PM

DiGeorge Syndrome Drug Market Key Factors Analysis, Demand, Overview and Top Companies Natera, Inc,  PharmiWeb.com

The smile that says I'm home: Little boy leaves hospital after winning two-year fight for life - The Sunday Post

9/21/2020 12:05:25 AM

The smile that says I'm home: Little boy leaves hospital after winning two-year fight for life  The Sunday Post

Little Plymouth warrior with rare condition is defying the odds - Plymouth Live

3/6/2020 8:00:00 AM

Little Plymouth warrior with rare condition is defying the odds  Plymouth Live

Growth in CHARGE syndrome: optimizing care with a multidisciplinary ap | JMDH - Dove Medical Press

8/1/2019 8:00:00 AM

Growth in CHARGE syndrome: optimizing care with a multidisciplinary ap | JMDH  Dove Medical Press

Latest News

Test

Test

Posted on Friday 12 June 2020

Proin eget tortor risus. Praesent sapien massa, convallis a pellentesque nec, egestas non nisi. Pellentesque in ipsum id orci porta dapibus. Nulla porttitor accumsan tincidunt. Mauris blandit aliquet …

Rachel on the Run

Rachel on the Run

Posted on Friday 19 April 2019

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…

join easyfundraising to help raise money while you shop

join easyfundraising to help raise money while you shop

Posted on Tuesday 9 January 2018

Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.