Introduction

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

In this Section

Latest News

Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

News From Google

Treating neurological symptoms of CHARGE syndrome - EurekAlert

4/28/2021 8:00:00 AM

Treating neurological symptoms of CHARGE syndrome  EurekAlert

Stimulant restores cell signaling, eases behavior issues in animals missing autism gene - Spectrum

5/28/2021 8:00:00 AM

Stimulant restores cell signaling, eases behavior issues in animals missing autism gene  Spectrum

Speak Now For Kids Advocacy Week - Bay News 9

6/11/2021 9:10:00 PM

Speak Now For Kids Advocacy Week  Bay News 9

Readers pay heartwarming tributes to carers - Manchester Evening News

6/13/2021 7:32:01 AM

Readers pay heartwarming tributes to carers  Manchester Evening News

Sleep Issues in Neurodevelopmental Disorders May Be Linked to High Serotonin and Blood-Brain Barrier - Genetic Engineering & Biotechnology News

6/8/2021 8:00:00 AM

Sleep Issues in Neurodevelopmental Disorders May Be Linked to High Serotonin and Blood-Brain Barrier  Genetic Engineering & Biotechnology News

Latest News

Behaviour In Charge Syndrome Online Questionnaire Study

Behaviour In Charge Syndrome Online Questionnaire Study

Posted on Tuesday 8 December 2020

Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.

Rachel on the Run

Rachel on the Run

Posted on Friday 19 April 2019

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…

join easyfundraising to help raise money while you shop

join easyfundraising to help raise money while you shop

Posted on Tuesday 9 January 2018

Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.