In this Section
Rachel on the RunFriday, April 19, 2019
I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.
National Conference and Family Weekend AnnouncedSunday, March 18, 2018
The national conference is a different type of event to the regional family days (which are great!) …
join easyfundraising to help raise money while you shopTuesday, January 9, 2018
Join easyfundraising and you can collect free donations for us every time you buy something online. …
Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us page.
Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that.
News From Google
Longboat Fire Department provides holiday surprise for child with CHARGE syndrome YourObserver.com
Growth in CHARGE syndrome: optimizing care with a multidisciplinary ap | JMDH Dove Medical Press
Community donates Christmas decorations to Frankfort boy with CHARGE syndrome The Frankfort Station
Beaumont Health takes back pediatric hospice service from Ohio company Crain's Detroit Business
Ashley boy, 6, finds happiness in fishing - News Wilkes-Barre Citizens Voice