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Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us page. 

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Authorities probe bomb found in Kansas field - Manhattan Mercury (subscription)

6/26/2017 11:44:56 PM

Authorities probe bomb found in Kansas fieldManhattan Mercury (subscription)Golden is battling CHARGE syndrome, which affects his vision, hearing and heart, and also stunts his growth. Oak Grove Elementary School Resource Officer Devin Kallauner recalled the decision-making process with the other officers. “It started off with ...and more »

Camp at UK Teaches Expanded Core, Independence to Students ... - UKNow (press release)

6/26/2017 5:30:12 PM

UKNow (press release)Camp at UK Teaches Expanded Core, Independence to Students ...UKNow (press release)A group of teenagers from across Kentucky participated in a camp for students who are deaf-blind last week at UK. The camp's activities - which included grocery ...and more »

Missouri boy with genetic disorder deemed honorary officer - Columbia Daily Tribune

6/25/2017 11:47:06 PM

Missouri boy with genetic disorder deemed honorary officerColumbia Daily TribuneGolden is battling CHARGE syndrome, which affects his vision, hearing and heart, and also stunts his growth. Oak Grove Elementary School Resource Officer Devin Kallauner recalled the decision-making process with the other officers. “It started off with ...and more »

Children's Miracle Network Celebration: Meet Emma - PA home page

5/30/2017 12:23:48 AM

PA home pageChildren's Miracle Network Celebration: Meet EmmaPA home pageEmma was born with "Charge Syndrome" and wasn't supposed to live to her first birthday. "Charge" is an acronym for a rare syndrome caused by a genetic disorder. It affects many areas of the body from her eyes, heart, nasal passages, growth, and hearing ...

Disabled man caught in the middle of program, family disputes - Toronto Star

6/16/2017 4:04:06 PM

Toronto StarDisabled man caught in the middle of program, family disputesToronto StarNicholas Deak, who has CHARGE syndrome, won't be able to use the organization's services as of July 4, according to a letter sent to his father, Leslie Deak, last month from the organization's board of directors president. The reason for the decision ...

Latest News

Dr David Brown to give talk in Bristol

Dr David Brown to give talk in Bristol

Posted on Tuesday 2 May 2017

Dr David Brown comes to the SENSE centre in Bristol on 7th June to give a presentation entitled: CHARGE syndrome after 34 years - an overview with a focus on sensory issues, posture and movement, and …

SIGNtific

SIGNtific

Posted on Wednesday 15 February 2017

SIGNtific is a series of Deaf-led family events at the Science Museum with voiceover interpreters that take place on the first Saturday of every month and during the holidays. Suitable for Deaf and he…

Multi-level tree house brings smile to boy with CHARGE Syndrome

Multi-level tree house brings smile to boy with CHARGE Syndrome

Posted on Friday 16 September 2016

Tree house brings smile to boy with CHARGE syndrome

We Have Charge Video

We Have Charge Video

Posted on Monday 12 September 2016

A video posted by Claudia Junghans on VIMEO interviews people with CHARGE and explores their lives