Support worker Taidgh Hughes, 31, will start an epic 100 mile walk that will take him along the Jurassic Coast to raise money for Charge Family Support Group in memory of his son Jenson.

At only 20 weeks old, Jenson died from Charge syndrome, an "extremely complex" syndrome involving extensive medical and physical difficulties that differ from child to child.

Taidgh said: "My girlfriend got pregnant with Jenson but we were told something was wrong. We did all the tests which showed that Jenson had full-blown Charge syndrome and it came from me. It was very difficult and hard for us as it came out of the blue.

"Unfortunately, Jenson was missing half of his heart and he died before he was born at 20 weeks. It's such a brutal condition and nobody knows about it.

"He died nearly two years ago in March 2020, so I decided I wanted to do something to raise awareness of the condition and push myself.


"I'm doing the challenge with one of my brothers and my friends - starting on March 11 - a few days before Jenson's second anniversary."

For Taidgh, the main purpose of the fundraiser is to raise awareness of Charge syndrome.

He said: "I want to raise awareness and money because Charge Family Support Group is a small charity that doesn't get a lot of money. I want to help families in a similar situation to us.

"The condition affects so many different parts of the body. It's so unknown and people are not aware of it.

"The Jurassic Coast is such a beautiful walk to do and if we can walk all of it, that would be an amazing achievement."

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