In this Section

Latest News

In this section we want to provide you with a some resources that we ourselves have created. There is a great deal of information out there and we want to be able to help you find it. 

The first section, Useful Links,  lists a selection websites that contain information both directly relevant to CHARGE in its overall context and also to its particularities. This list is constantly being updated as there are new items being added all of the time. If you have any links that you have found useful, please do send them in from our Contact Us page. 

The second section, Charge Search Engine, shows the results of an extensive web crawl. The web crawl takes place every month and is being updated all of the time. What we seek to achieve with this page is to curate information that will help to bring together some of the very useful and usable information that lays out there beyond the 2 page of Google. 

To use the web crawl interface you can either facet the search - just like you do on Amazon - or you can type in the box for a live search. The results displayed are not help on our site; we have just indexed them and curated according to the relevant aspects of CHARGE.

The technology behind the web crawler is being refined, do if you believe it will be useful to you, please revisit the page. 

If you would like any further information on anything in the site please visit our Contact Us page.

Latest News

Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.

Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.

Posted on Wednesday 6 April 2022

CHARGE syndrome, which affects approximately one in 10,000 newborns worldwide, is associated with neurological and behavioural conditions like intellectual disability, attention deficit disorder, conv…

Tyrese Dibba stars in animated class

Tyrese Dibba stars in animated class

Posted on Tuesday 22 March 2022

A teenager who helped thousands of people learn British Sign Language (BSL) during the first Covid-19 lockdown is being turned into an animated character in new lessons.

A Walk for Charge

A Walk for Charge

Posted on Tuesday 11 January 2022

Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory of his son that passed away having been diagnosed with CHARGE Syndrome which is a rare genetic dise…

Behaviour In Charge Syndrome Online Questionnaire Study

Behaviour In Charge Syndrome Online Questionnaire Study

Posted on Tuesday 8 December 2020

Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.