In this Section
Behaviour In Charge Syndrome Online Questionnaire StudyTuesday, December 8, 2020
Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.
Rachel on the RunFriday, April 19, 2019
I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.
National Conference and Family Weekend AnnouncedSunday, March 18, 2018
The national conference is a different type of event to the regional family days (which are great!) …
In this section we want to provide you with a some resources that we ourselves have created. There is a great deal of information out there and we want to be able to help you find it.
The first section, Useful Links, lists a selection websites that contain information both directly relevant to CHARGE in its overall context and also to its particularities. This list is constantly being updated as there are new items being added all of the time. If you have any links that you have found useful, please do send them in from our Contact Us page.
The second section, Charge Search Engine, shows the results of an extensive web crawl. The web crawl takes place every month and is being updated all of the time. What we seek to achieve with this page is to curate information that will help to bring together some of the very useful and usable information that lays out there beyond the 2 page of Google.
To use the web crawl interface you can either facet the search - just like you do on Amazon - or you can type in the box for a live search. The results displayed are not help on our site; we have just indexed them and curated according to the relevant aspects of CHARGE.
The technology behind the web crawler is being refined, do if you believe it will be useful to you, please revisit the page.
If you would like any further information on anything in the site please visit our Contact Us page.