Looking at a range of behaviours, skills and impairments in CHARGE syndrome. Repetitive behaviour, hyperactivity, mood, challenging behaviour, social functioning, sleep and health. It also ask some questions about family well-being and the impact that having a child with a disability has on the family.
They flyer for the study can be found here
Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.
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CHARGE syndrome, which affects approximately one in 10,000 newborns worldwide, is associated with neurological and behavioural conditions like intellectual disability, attention deficit disorder, conv…
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A teenager who helped thousands of people learn British Sign Language (BSL) during the first Covid-19 lockdown is being turned into an animated character in new lessons.
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Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory of his son that passed away having been diagnosed with CHARGE Syndrome which is a rare genetic dise…
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Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.