Looking at a range of behaviours, skills and impairments in CHARGE syndrome. Repetitive behaviour, hyperactivity, mood, challenging behaviour, social functioning, sleep and health. It also ask some questions about family well-being and the impact that having a child with a disability has on the family.
They flyer for the study can be found here
Latest News
Behaviour In Charge Syndrome Online Questionnaire Study
Posted on Tuesday 8 December 2020
Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.
Rachel on the Run
Posted on Friday 19 April 2019
I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.
National Conference and Family Weekend Announced
Posted on Sunday 18 March 2018
The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…
join easyfundraising to help raise money while you shop
Posted on Tuesday 9 January 2018
Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.