CHARGE Syndrome UK Conference - Professionals Day

National Conference


Simon Howard at


Friday, October 19, 2018, 9:00 AM until Friday, October 19, 2018, 4:15 PM


Register on EventBrite

CHARGE Syndrome Family Support Group (CFSG) would like to invite you to the CHARGE Syndrome UK Professionals Day 2018.

This is a fantastic opportunity to hear from experts in CHARGE and to meet and network with other healthcare professionals interested in this complex congenital condition that affects 1 in 10,000 children.

The programme is being finalised but there are already a number of national and international speakers signed up, including:

  • Prof Conny van Ravenswaaij - Geneticist and Netherlands CHARGE group Medical Advisor, University of Groningen, Netherlands

  • Dr Albert Basson - Reader in Developmental Biology, Kings College, London

  • Dr Siddharth Banka - Consultant Clinical Geneticist, University of Manchester

  • Dr Gail Deuce - MSI Constulant, Gail Deuce Consultancy

  • Dr Helena Gleeson - Endocrinologist & Transition lead, University Hospital Birmingham

  • Dr Caroline Richards, Consultant Psychologist, University of Birmingham

There will also be sessions from the parents' perspective and on the practicalities of setting up a service.


A limited number of rooms have been reserved at Premier Inn - South Longbridge, which is 10 min drive or 15 min bus journey to the venue. Double, Twin, and Accessible rooms available. £75/night room only, +£8/person inc breakfast. Free wifi. Supermarket and restaurants in the immediate vicinity.

After booking for the conference please contact to book your room.



TouchBase Pears
750 Bristol Road
B29 6NA

Latest News

Behaviour In Charge Syndrome Online Questionnaire Study

Behaviour In Charge Syndrome Online Questionnaire Study

Posted on Tuesday 8 December 2020

Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.

Rachel on the Run

Rachel on the Run

Posted on Friday 19 April 2019

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…

join easyfundraising to help raise money while you shop

join easyfundraising to help raise money while you shop

Posted on Tuesday 9 January 2018

Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.