In the reception area there was a large display of signed photos and memorabilia that formed a silent auction by sealed bid. The boot from Usain Bolt had a reserve price of £600.
The meal started with speeches from Kerry Louise Alley (the main organiser of the event) Charlotte Lawley who represented the Solihull Downs Family Support Group and Steve Dawson from the CHARGE Family Support group.
During the evening there were various table games and auctions of various items which added up to an estimated £3,000 to £4,000 which will be split between both charities.
The whole event was very slick and well organised. It was a credit to Kerry and her friends.
Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.
Posted on Wednesday 6 April 2022
CHARGE syndrome, which affects approximately one in 10,000 newborns worldwide, is associated with neurological and behavioural conditions like intellectual disability, attention deficit disorder, conv…
Posted on Tuesday 22 March 2022
A teenager who helped thousands of people learn British Sign Language (BSL) during the first Covid-19 lockdown is being turned into an animated character in new lessons.
Posted on Tuesday 11 January 2022
Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory of his son that passed away having been diagnosed with CHARGE Syndrome which is a rare genetic dise…
Posted on Tuesday 8 December 2020
Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.