Committee Members

Name Position Relationship Contact
Lydia Howarth Chair Parent 12 Wellington Road, London, W5 4UH
Simon Howard Vice-chair Parent  
Frances Concannon Secretary Parent  
Peter Hughes Treasurer Grandparent  
Esther Freeman Newsletter Editor Parent  
Jeremy Kirk Consultant Paediatrician Specialist  
Gail Deuce Principle MSI Consultant Teacher Specialist  
Martin Stevens Adult with CHARGE Adult with CHARGE  
Lesley Rogers   Parent  
Leanne Howie   Parent  
Steven Ho   Parent  

 Last updated: 15/02/2017

Latest News

Dr David Brown to give talk in Bristol

Dr David Brown to give talk in Bristol

Posted on Tuesday 2 May 2017

Dr David Brown comes to the SENSE centre in Bristol on 7th June to give a presentation entitled: CHARGE syndrome after 34 years - an overview with a focus on sensory issues, posture and movement, and …

SIGNtific

SIGNtific

Posted on Wednesday 15 February 2017

SIGNtific is a series of Deaf-led family events at the Science Museum with voiceover interpreters that take place on the first Saturday of every month and during the holidays. Suitable for Deaf and he…

Multi-level tree house brings smile to boy with CHARGE Syndrome

Multi-level tree house brings smile to boy with CHARGE Syndrome

Posted on Friday 16 September 2016

Tree house brings smile to boy with CHARGE syndrome

We Have Charge Video

We Have Charge Video

Posted on Monday 12 September 2016

A video posted by Claudia Junghans on VIMEO interviews people with CHARGE and explores their lives