Having a family member with a rare condition can feel very isolating. We aim to change that. Please don’t hesitate to contact us.
For General Queries
Steven Ho (Chair)
07950 233 100
If you would like to send a cheque donation, please post the cheque to:
Peter Hughes (Treasurer)
1 Rugby Drive
Don’t forget to include a short letter/note with the reason for your donation and your contact details so we can send a thank you!