Having a family member with a rare condition can feel very isolating. We aim to change that. Please don’t hesitate to contact us. 

Gail TalkingFirst point of contact: Simon Howard, 59 Elmer Road, London, SE6 2HA
Telephone: 020 8265 3604

email: si_howard@hotmail.com

Latest News

Dr David Brown to give talk in Bristol

Dr David Brown to give talk in Bristol

Posted on Tuesday 2 May 2017

Dr David Brown comes to the SENSE centre in Bristol on 7th June to give a presentation entitled: CHARGE syndrome after 34 years - an overview with a focus on sensory issues, posture and movement, and …

SIGNtific

SIGNtific

Posted on Wednesday 15 February 2017

SIGNtific is a series of Deaf-led family events at the Science Museum with voiceover interpreters that take place on the first Saturday of every month and during the holidays. Suitable for Deaf and he…

Multi-level tree house brings smile to boy with CHARGE Syndrome

Multi-level tree house brings smile to boy with CHARGE Syndrome

Posted on Friday 16 September 2016

Tree house brings smile to boy with CHARGE syndrome

We Have Charge Video

We Have Charge Video

Posted on Monday 12 September 2016

A video posted by Claudia Junghans on VIMEO interviews people with CHARGE and explores their lives