Having a family member with a rare condition can feel very isolating. We aim to change that. Please don’t hesitate to contact us. 

Gail TalkingFirst point of contact: Simon Howard, 59 Elmer Road, London, SE6 2HA
Telephone: 020 8265 3604

email: si_howard@hotmail.com

Latest News

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…

join easyfundraising to help raise money while you shop

join easyfundraising to help raise money while you shop

Posted on Tuesday 9 January 2018

Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.

Merry Christmas and a Happy New Year

Merry Christmas and a Happy New Year

Posted on Thursday 4 January 2018

A Christmas message from the Team

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

Posted on Thursday 9 November 2017

The Ultimate Guide to Adapting Your Home If You have Visual Impairment