Events

View all of our events

Our priority as a Group is to create opportunities to bring our families together. If you are interested in attending an event or helping to organise one in your area, please get in touch.  

There are no events planned at this time

If you are interested in planning an event, please contact Simon Howard at si_howard@hotmail.com

19 May 2011

Family Day Saturday

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17 Oct 2015

London South East Family Day and AGM

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17 Sep 2016

CHARGE Family Support Group, Family Weekend and Conference

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07 Jun 2017

A presentation on CHARGE Syndrome by Dr. David Brown

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02 Jul 2017

Family Day Barnet July 2nd 2017

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19 Oct 2018

CHARGE Syndrome UK Conference - Professionals Day

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20 Oct 2018

CHARGE Syndrome UK Conference - National Family Day

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22 Feb 2019

Touchbase Wales meet up

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09 Mar 2019

Sense CHARGE Day Exeter

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Latest News

Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.

Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.

Posted on Wednesday 6 April 2022

CHARGE syndrome, which affects approximately one in 10,000 newborns worldwide, is associated with neurological and behavioural conditions like intellectual disability, attention deficit disorder, conv…

Tyrese Dibba stars in animated class

Tyrese Dibba stars in animated class

Posted on Tuesday 22 March 2022

A teenager who helped thousands of people learn British Sign Language (BSL) during the first Covid-19 lockdown is being turned into an animated character in new lessons.

A Walk for Charge

A Walk for Charge

Posted on Tuesday 11 January 2022

Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory of his son that passed away having been diagnosed with CHARGE Syndrome which is a rare genetic dise…

Behaviour In Charge Syndrome Online Questionnaire Study

Behaviour In Charge Syndrome Online Questionnaire Study

Posted on Tuesday 8 December 2020

Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.