Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.
Wednesday, April 6, 2022CHARGE syndrome, which affects approximately one in 10,000 newborns worldwide, is associated with neurological and behavioural conditions like intellectual disability, attention deficit disorder, convulsions, and autism. And there is currently no tre…
Tyrese Dibba stars in animated class
Tuesday, March 22, 2022A teenager who helped thousands of people learn British Sign Language (BSL) during the first Covid-19 lockdown is being turned into an animated character in new lessons.
A Walk for Charge
Tuesday, January 11, 2022Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory of his son that passed away having been diagnosed with CHARGE Syndrome which is a rare genetic disease. This is in support of the CHARGE family Suppo…
Behaviour In Charge Syndrome Online Questionnaire Study
Tuesday, December 8, 2020Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.
Rachel on the Run
Friday, April 19, 2019I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.
National Conference and Family Weekend Announced
Sunday, March 18, 2018The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultations with experts in CHARGE. The programme is still …
join easyfundraising to help raise money while you shop
Tuesday, January 9, 2018Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.
Merry Christmas and a Happy New Year
Thursday, January 4, 2018A Christmas message from the Team
The Ultimate Guide to Adapting Your Home If You have Visual Impairment
Thursday, November 9, 2017The Ultimate Guide to Adapting Your Home If You have Visual Impairment
Wedding anniversary raises money
Wednesday, September 6, 2017