The group’s aim is to create a positive, supportive network of individuals, parents, families and professionals to share ideas, experiences, information and give vital support.
The group is run by individuals with CHARGE, parents and grandparents as well as professionals with a particular interest in the condition. We work on an entirely voluntary basis and membership is free. New members are always welcome
There are no planned events. To look at our past events, click here
Parents, carers, friends and family, and those living with CHARGE tell us their stories.
Browse the archive at our Stories page here
Help us to build a database of resources that will help everyone in the CHARGE community and in other fields.
From the best walking frame to trachaeostomy tips, please submit your experiences and expertise to our system.
You'll find out more information here
Our priority as a Group is to create opportunities to bring our families together. If you are interested in attending an event or helping to organise one in your area, please get in touch.
More information is available here
Our priority as a Group is to create opportunities to bring our families together. If you are interested in attending an event or helping to organise one in your area, please get in touch.
More information is available here